While we aim to keep all lists of links of high quality, the inclusion of a link does not imply that APEG endorses or otherwise approves that site or the information contained therein. Members must make their own judgment about any information that they obtain from any linked site
Professional Societies:
Support Groups:
- CAH Support Group (Australia)
- Australian Leukodystrophy Support Group Inc (ALDS)
- MAGIC Foundation (USA) – growth support group with CAH section
- CAH Support Group (USA)
- Climb Congenital Adrenal Hyperplasia UK Support Group
- CARES Foundation
- Hormone Health Network
- NADF – National Adrenal Diseases Foundation
- Australian Addison’s Disease Association
- American Autoimmune Diseases Related Association
- AIS Support Group Australia
- DSD families (UK)
- Adrenal Insufficiency New Zealand – a home for primary and secondary adrenal insufficiency also known as Addison’s Disease
Other resources and links:
- Steroid use and stress dosing (Starship Children’s Hospital Clinical Guidelines, New Zealand)
- Your child with CAH – book written by Garry Warne (APEG member)
- Hormones and Me Booklet Series. CLICK HERE to find the booklets listed below
- Congenital Adrenal Hyperplasia (CAH)
- Management of Emergency or Stress Situations
- Hydrocortisone Injection Instruction (Sydney Children’s Hospital)
- Parenting Resources from NSW (Sydney Children’s Hospital)
- Interactive educational website about Congenital Adrenal Hyperplasia (UK Based teaching)
- Congenital Adrenal Hyperplasia (Explain Hormones information website) – information about BOYS
- Congenital Adrenal Hyperplasia (Explain Hormones information website) – information about GIRLS
Tests:
Last comprehensive update completed on 29 March 2018.