Australasian Diabetes Data Network (ADDN)
The ADDN project commenced in 2012 as a joint initiative between the Australasian Paediatric Endocrine Group (APEG) and Juvenile Diabetes Research Foundation (JDRF) Australia. The first phase of ADDN established a secure and centralised data repository hosted by the University of Melbourne, holding de-identified longitudinal demographic and clinical data for more than 5,000 children and adolescents with diabetes. The overall aim of the ADDN project is to facilitate research and improve the health of people with diabetes.
In 2016 the Australian Diabetes Society (ADS) has joined APEG and JDRF Australia for the second phase of ADDN which will expand the number of paediatric centres and extend recruitment to include adult centres. ADDN will extend its data capture and provide richer and more complete information about the natural history, clinical progression and most effective treatment regimens for all people living with type 1 diabetes. In phase two, the focus will shift from development to improving data integrity, quality and overseeing use of the data for research.
ADDN is governed by a committee with members representing each Australian state or territory as well as New Zealand. The ADDN Committee is committed to ensuring data are clinically useful and accessible to researchers within strict ethical and governance boundaries.
With the data collected by ADDN it will enable, for the first time, to conduct longitudinal research across paediatric and adult diabetes services. It will be possible to identify treatment strategies for type 1 diabetes that provide the best long-term outcomes, as well as enabling researchers to determine whether patients are eligible for clinical trials. ADDN publishes benchmarking reports twice annually to support participating centres in their quality improvement efforts.
Data are available to any researcher.
To find out more about ADDN we encourage the wider research community to visit the ADDN website HERE
- Phelan H, Clapin H, et al; The Australasian Diabetes Data Network: first national audit of children and adolescents with type 1 diabetes. Med J Aust. 2017 Feb 20; 206(3):121-125 https://www.mja.com.au/journal/2017/206/3/australasian-diabetes-data-network-first-national-audit-children-and-adolescents
- Clapin H, Phelan H, et al; Australasian Diabetes Data Network: Building a Collaborative Resource. J Diabetes Sci Technol. 2016 Aug 22; 10(5):1015-26 http://journals.sagepub.com/doi/abs/10.1177/1932296816648983
- Maria E Craig, Nicole Prinz, Claire T. Boyle, Fiona M Campbell, Timothy Jones, Sabine E Hofer, Jill H Simmons, Naomi Holman, Elaine Tham, Elke Fröhlich-Reiterer, Stephanie DuBose, Helen Thornton, Bruce King, David M. Maahs, Reinhard W Holl and Justin T Warner on behalf of the Australasian Diabetes Data Network (ADDN), the T1D Exchange Clinic Network (T1DX), the National Paediatric Diabetes Audit (NPDA) and the Royal College of Paediatrics and Child Health, and the Prospective Diabetes Follow-up Registry (DPV) initiative; Prevalence of Celiac Disease in 52,721 Youth with Type 1 Diabetes: international comparison across three continents. Diabetes Care. 2017 May 25 https://doi.org/10.2337/dc16-2508
- Craig ME, Prinz N, Boyle CT, Campbell FM, Jones TW, Hofer SE, Simmons JH, Holman N, Tham E, Fröhlich-Reiterer E, DuBose S, Thornton H, King B, Maahs DM, Holl RW and Warner JT; Australasian Diabetes Data Network (ADDN), the T1D Exchange Clinic Network (T1DX), the National Paediatric Diabetes Audit (NPDA) and the Royal College of Paediatrics and Child Health, and the Prospective Diabetes Follow-up Registry (DPV) initiative. Response to Comment on Craig et al. Prevalence of Celiac Disease in 52,721 Youth With Type 1 Diabetes: International Comparison Across Three Continents. Diabetes Care 2017; 40:1034-1040. Diabetes Care 2017; 40:e1–e2 https://doi.org/10.2337/dci17-0040